Lucia

 


 

 


At 19 months old, beautiful Lucia is diagnosed with Primary Hyperoxaluria, requiring her to have kidney and Liver transplants. Lucia is on the transplant list for a combined liver and kidney transplant.  Typically a patient will receive the transplant within two months. The excitement is high as this has been a year in the making. 

Lucia endures dialysis every morning, Monday through Saturday leaving little time for play.  After an insightful interview conducted by our volunteers, we discovered this innocent little girl loves toys that make noise, cheese puffs, picture books, the outdoors and watching her brother play.  Lucia likes to dance by wiggling her body and smiles non-stop.

 This made Lucia’s wish one of great importance; to keep her smiling and to remain an inspiration to us all.  The family’s wish for Lucia was to provide toys for play and a camcorder to catch Lucia’s very special moments. 

On July 22, it was like Christmas all over again for Lucia.  With wrapping paper flying and the attention on her, she  received her wish.  

 

Lucia’s parents, Ed and Hyacinth, continue to lead everyday normal lives while waiting for her surgery.  Ed continues to work, her brother Edwin has started Kindergarten and Hyacinth continues to keep up with Lucia’s daily treatments to dialysis and the doctor appointments.