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Posted
on Mon, Apr. 18, 2005 |
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Life has not been kind to Zachary Rains. At
age 13, he has already lost his biological father, a foster father and an
adoptive father to premature deaths. A year ago, he was diagnosed with a rare
connective tissue disorder, which, among other things, has enlarged his aorta
where it connects to his heart. He also has a form of hemophilia, which
complicates the inevitable surgeries. He and his mother relocated from And yet Zachary sees the humor in life.
Specifically, he sees the humor in the comic strip "He's a smart-aleck — kind of like
me," said Zachary, who owns Today, Zachary and his mother are bound for Wishes & More is the product of the mass
defection from the Make-A-Wish Foundation of Minnesota last October, when its
entire board of directors and advisory board resigned. The new group made its first grants in late
March, making four to date, said president Karla Blomberg. "It's about getting all the pieces
together. You can't grant wishes without money, and you can't raise money
until you get credibility in place," she said. Blomberg knows about building reputations: She
co-founded the state Make-A-Wish Foundation in 1982 and was its board
president until October, which made the split all the more painful. "I could leave the organization, but I
couldn't leave the mission," Blomberg said. Blomberg said she bears no ill will over the
split. She and the Make-A-Wish Foundation of Minnesota say there are plenty
of wishes to go around. This year, the state Make-A-Wish group that
remains expects to grant more than 200 wishes. Current Make-A-Wish leaders could not be
reached for comment, but the group has hired a new executive director, its
second in six months. Next Monday, Tom McKinney, executive director of the
Northwest YMCA in Blomberg's new group's direction reflects some
of the philosophical differences board members cited when they split from
Make-A-Wish. Hunting and fishing trips are expressly allowed, which was
important to Zachary's mother, Holly Arnold-Rains. She said she had already filed paperwork with
Make-A-Wish but withdrew it during the controversy. Although her son's wish
revolved around "They understood the culture of Wishes & More also addresses instances
when a child dies before a wish is granted. In such cases, the family will
receive money for a funeral or memorial. In the case of vacation trips, the
wish will be granted for remaining siblings, Blomberg said. Another feature will be $1,000 scholarships
for post-high school education to each child to whom they grant a wish,
Blomberg said. The scholarships and memorials express a more
comprehensive view of each child, she said. The message is that the wish
group supports a family, whatever the outcome of a child's illness, she said. So far, the new group has raised $200,000. "We've had hundreds of people contacting
us with their support," she said. The group hopes to firm up its board of
directors in the coming weeks, some of them former members of the Make-A-Wish
board. ONLINE For more information, go to www.wishesnmore.org and www.wishmn.org Mary Bauer can be reached at mbauer@pioneerpress.com or
651-228-5311. |
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